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Education & Training Archiving and Sharing Data

Activities Supported by the Center

Archive of Data on Disability to Enable Policy and research (ADDEP)

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The Archive of Data on Disability to Enable Policy and research (ADDEP) is a new initiative to build a repository of data on disability and rehabilitation. The mission of ADDEP is to improve and enable research among researchers, policymakers, and practitioners by providing access to disability and rehabilitation data.

ADDEP data can be used to better understand and inform the implementation of the Americans with Disabilities Act and other disability policies with the goal of improving the lives and conditions of people with disabilities.

In addition to providing access to data for research and analysis, ADDEP strives to offer user support and community outreach to enable data to be optimally used by the widest audience.

Edu Training

webinar graphic Presenters include Roland Kushner, Associate Professor of Business at Muhlenberg College, and Sook-Lei Liew, Pilot Project PI at the CLDR, USC Division of Biokinesiology and Physical Therapy, the Keck School of Medicine of USC, Department of Neurology and the USC Viterbi School of Engineering
University of Texas Medical Branch

ICPSR Data Depositors Tell All! (a Q&A session)

What draws people to deposit their data at ICPSR, particularly for the first time? What went on in their heads during their decision-making process? Join us to find out! Recent new depositors will talk about sharing their data with ICPSR, why they chose the institute, and the benefits they have so far received from their decisions. This is a great opportunity to ask the depositor questions about their data-sharing experiences with ICPSR!
photo The UTMB Office of Biostatistics, Clinical & Translational Science Awards (CTSA) and the Center for Large Data Research and Data Sharing in Rehabilitation (CLDR) Present: TRCC (Texas Regional CTSA Consortium) Quantitative Seminar Series - February 21, 2018

The Hope, Hype and Reality of EHR for Research

Gulshan Sharma, MD, MPH, Vice President, Chief Medical & Clinical Innovation Officer; Director, Division of Pulmonary Critical Care & Sleep Medicine; Sealy and Smith Distinguished Chair in Internal Medicine
University of Texas Medical Branch
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Archiving Data with Archive of Data on Disability to Enable Policy and research (ADDEP) [slides]

ICPSR Webinar, December 1, 2016 - Presented by Amy Pienta
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Introduction to the Archive of Data on Disability to Enable Policy and research (ADDEP) [slides]

ICPSR Webinar, November 10, 2016 - Presented by Alison Stroud and Jai Holt
An Introduction to Data Sharing at ICPSR and the Archive of Data on Disability to Enable Policy and Research (ADDEP) An Introduction to Data Sharing at ICPSR and the Archive of Data on Disability to Enable Policy and Research (ADDEP)

April 2016 AOTA CLDR Pre-Conference Institute. Presented by George Alter, PhD, Professor & Director, ICPSR, University of Michigan
Lowering the Barriers to Data Sharing: ICPSR and bioCADDIE Lowering the Barriers to Data Sharing: ICPSR and bioCADDIE

April 2015 Health Policy Dialogue co-sponsored by the Office of the President and the Office of Health Policy and Legislative Affairs at UTMB. Presented by George Alter, PhD, Professor & Director, ICPSR, University of Michigan.

The CLDR is funded by the National Institutes of Health (grant# P2CHD065702). See About Us for more details.

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