Center for Large Data Research and Data Sharing in Rehabilitation

 Rehab Sciences | March 15, 2022

In April 2022 the NIH is launching a new Scientific Data Sharing website, a one-stop-shop for all the information you need to know about NIH sharing policies. Read more about it and check out a  sneak peek of the new website.

Rehab Sciences | March 4, 2021

The Final NIH Policy for Data Management and Sharing has been released after the publication of the Final NIH Statement on Sharing Research Data in 2003. This represents the agency’s continued commitment to share and make broadly available the results of publicly funded biomedical research. Read more in the NIH Extramural Nexus. The CLDR, lead by Kenneth Ottenbacher, PhD, OTR, has been integral in increasing the capacity of the field of Rehabilitation to meet and lead the data sharing paradigm over the past 10 years.

Rehab Sciences | February 25, 2021

The “Emergence and Evolution of Social Self-management of Parkinson's Disease, Greater Boston Metropolitan Area, 5 states, 2013-2019 (ICPSR 37631)” study has been released with assistance from the Archive of Data on Disability to Enable Policy and research (ADDEP). This dataset is a mixed-method (quantitative-qualitative) prospective cohort study of how people with Parkinson's disease and their primary caregiver (as available) naturalistically manage chronic disease, wellness and social life in their home and community.

Rehab Sciences | January 22, 2021

Recently, The Centers for Medicare & Medicaid Services (CMS) is announced the beta release of the redesigned data.cms.gov website. The goal of the website redesign is to make it easier for users to discover, access, and understand CMS data. CMS is publicly requesting testing and feedback.