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DESCRIPTION:The Department of Bioethics and Health Humanities&nbsp\;Seminar
  SeriesProudly Presents:"Developing Metrics for Responsible Data Stewardsh
 ip in Genomics"by Dr. Vasilki N. RahimzadehAssistant ProfessorCenter for M
 edical Ethics and Health PolicyBaylor College of MedicineThursday\, Oct. 1
 0\, 202412-1 PMSHP/SON 1.304Abstract:&nbsp\;There is widespread acceptance
  that sharing genomic and related health data can advance our collective u
 nderstanding of genetic/genomic etiologies of disease. Government research
  agencies make sharing scientific data stemming from funded projects a con
 dition of that funding. The research community has been vocal about the ne
 ed to make data participants altruistically contribute to research more fi
 ndable\, accessible\, interoperable\, and reusable. How do genomic data re
 positories track their own progress on such stewardship goals? What outcom
 es should be measured to ensure quality and effectiveness of data stewards
 hip over time? In this talk\, I provide preliminary findings from a scopin
 g review of the literature aimed at developing a core outcomes list for re
 sponsible genomic data stewardship in the cloud. I discuss how new adaptat
 ions of a reliable method to measure data stewardship outcomes in environm
 ental/climate science can be instructive for the human genomics community.
 Contact: &nbsp\;&nbsp\;&nbsp\;&nbsp\;Email:&nbsp\;Kathryne Dunn&nbsp\;&nbs
 p\;&nbsp\;&nbsp\;&nbsp\;For:&nbsp\;The School of Public and Population Hea
 lth &nbsp\;&nbsp\;&nbsp\;&nbsp\;Phone:&nbsp\;409-772-1128
DTEND:20241010T180000Z
DTSTAMP:20260508T170140Z
DTSTART:20241010T170000Z
LOCATION:TX\,Galveston
SEQUENCE:0
SUMMARY:BHH Seminar Series: "Developing Metrics for Responsible Data Stewar
 dship in Genomics"
UID:RFCALITEM639138385005556765
X-ALT-DESC;FMTTYPE=text/html:<p align="center">The Department of Bioethics 
 and Health Humanities&nbsp\;Seminar Series</p><p align="center">Proudly Pr
 esents:</p><p>"Developing Metrics for Responsible Data Stewardship in Geno
 mics"</p><p align="center">by Dr. Vasilki N. Rahimzadeh<br />Assistant Pro
 fessor<br />Center for Medical Ethics and Health Policy<br />Baylor Colleg
 e of Medicine</p><p align="center">Thursday\, Oct. 10\, 2024<br />12-1 PM<
 br />SHP/SON 1.304</p><p><strong>Abstract</strong>:&nbsp\;<br />There is w
 idespread acceptance that sharing genomic and related health data can adva
 nce our collective understanding of genetic/genomic etiologies of disease.
  Government research agencies make sharing scientific data stemming from f
 unded projects a condition of that funding. The research community has bee
 n vocal about the need to make data participants altruistically contribute
  to research more findable\, accessible\, interoperable\, and reusable. Ho
 w do genomic data repositories track their own progress on such stewardshi
 p goals? What outcomes should be measured to ensure quality and effectiven
 ess of data stewardship over time? In this talk\, I provide preliminary fi
 ndings from a scoping review of the literature aimed at developing a core 
 outcomes list for responsible genomic data stewardship in the cloud. I dis
 cuss how new adaptations of a reliable method to measure data stewardship 
 outcomes in environmental/climate science can be instructive for the human
  genomics community.<br /></p><p><strong>Contact: &nbsp\;&nbsp\;&nbsp\;&nb
 sp\;Email:&nbsp\;</strong><a href="mailto:kddunn@utmb.edu?subject=BHH%20Se
 minar%20Series%20Presents\,%20%27%27Motivational%20Barriers%20to%20Care%20
 and%20the%20Ethics%20of%20Encouragement%27%27%20by%20Dr.%20Christopher%20M
 asciari"><strong>Kathryne Dunn</strong></a><strong>&nbsp\;&nbsp\;&nbsp\;&n
 bsp\;&nbsp\;</strong></p><p><strong>For:&nbsp\;The School of Public and Po
 pulation Health &nbsp\;&nbsp\;&nbsp\;&nbsp\;Phone:&nbsp\;409-772-1128</str
 ong></p>
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