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DTSTART:20251102T020000
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DESCRIPTION:Elizabeth and Chauncey Leake Memorial FundDeveloping Metrics fo
 r Responsible Data Stewardship in GenomicsSpeaker: Vasiliki N. Rahimzadeh\
 , PhDAssistant ProfessorCenter for Medical Ethics and Health PolicyOct. 10
 \, 2024Noon to 1 p.m.Location: SHP/SON 1.304Event flierThere is widespread
  acceptance that sharing genomic and related health data can advance our c
 ollective understanding of genetic/genomic etiologies of disease. Governme
 nt research agencies make sharing scientific data stemming from funded pro
 jects a condition of that funding. The research community has been vocal a
 bout the need to make data participants altruistically contribute to resea
 rch more findable\, accessible\, interoperable\, and reusable. How do geno
 mic data repositories track their own progress on such stewardship goals? 
 What outcomes should be measured to ensure quality and effectiveness of da
 ta stewardship over time? In this talk\, I provide preliminary findings fr
 om a scoping review of the literature aimed at developing a core outcomes 
 list for responsible genomic data stewardship in the cloud. I discuss how 
 new adaptations of a reliable method to measure data stewardship outcomes 
 in environmental/climate science can be instructive for the human genomics
  community.
DTEND:20241010T180000Z
DTSTAMP:20260420T100247Z
DTSTART:20241010T170000Z
LOCATION:
SEQUENCE:0
SUMMARY:Developing Metrics for Responsible Data Stewardship in Genomics
UID:RFCALITEM639122581678612916
X-ALT-DESC;FMTTYPE=text/html:<h3 style="text-align:center\;">Elizabeth and 
 Chauncey Leake Memorial Fund</h3><h2 style="text-align:center\;">Developin
 g Metrics for Responsible Data Stewardship in Genomics</h2><h4 style="text
 -align:center\;">Speaker: <br />Vasiliki N. Rahimzadeh\, PhD<br />Assistan
 t Professor<br />Center for Medical Ethics and Health Policy</h4><h4 style
 ="text-align:center\;">Oct. 10\, 2024<br />Noon to 1 p.m.<br />Location: S
 HP/SON 1.304</h4><h4 style="text-align:center\;"><a href="https://liveutmb
 .sharepoint.com/:b:/s/collaboration/webfiles/ESoaPK2izchLukRU69K2tucBmqagX
 yItCfUaZJdIIrjhWw?e=JsRo3j" target="_blank" title="Open flier"><span style
 ="text-decoration:underline\;">Event flier</span></a></h4><div><p>There is
  widespread acceptance that sharing genomic and related health data can ad
 vance our collective understanding of genetic/genomic etiologies of diseas
 e. Government research agencies make sharing scientific data stemming from
  funded projects a condition of that funding. The research community has b
 een vocal about the need to make data participants altruistically contribu
 te to research more findable\, accessible\, interoperable\, and reusable. 
 How do genomic data repositories track their own progress on such stewards
 hip goals? What outcomes should be measured to ensure quality and effectiv
 eness of data stewardship over time? In this talk\, I provide preliminary 
 findings from a scoping review of the literature aimed at developing a cor
 e outcomes list for responsible genomic data stewardship in the cloud. I d
 iscuss how new adaptations of a reliable method to measure data stewardshi
 p outcomes in environmental/climate science can be instructive for the hum
 an genomics community.</p></div>
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