Data Curation for Rehabilitation Research and Related Clinical Trials
(Fort Collins, CO) - June 12-13, 2018
Sponsored by the Archive of Data on Disability to Enable Policy and research (ADDEP)
. Co-sponsored by the Center for Large Data Research and Data Sharing in Rehabilitation (CLDR), Rehabilitation Research Resource to Enhance Clinical Trials (REACT), Medical Rehabilitation Research Resource (MR3) Network, and Department of Occupational Therapy - Colorado State University.
What is data curation? This two-day workshop is for any individual interested or actively engaged in preparing data, including clinical trial data, for sharing and reuse among those involved in rehabilitation and disability outcomes research. Data curation includes the steps taken to ensure that research data can be used by secondary users long into the future. Increasingly, federal agencies are asking researchers and projects they fund to ensure the data produced are accessible to others. This workshop will provide practical training for how best to accomplish this goal.
Workshop participants will learn how to plan, review, clean, document, and disseminate data, including clinical trial data and data containing disclosure risks. Emphasis will be placed on hands-on exercises demonstrating curation practices as well as discussion with others in the workshop. Workshop participants can expect to leave with knowledge and experience of how to plan, assess, improve, and disseminate data for long-term preservation and access. Individuals who have collected or plan to collect their own data will benefit most from this workshop.