Roxanna Bendixen, PhD
Assistant Professor and Director
Master of Science in Health and Rehabilitation Science
University of Pittsburgh
K. Vandenborne, PhD, PT
Infants and children with early onset neuromuscular disorders focused on participation and quality of life; validity and reliability of pediatric outcome measures; and community-based activity monitoring through portable fitness tracking devices
- 1997 University of Florida BS, Occupational Therapy
- 2002 University of Florida MS, Health Science
- 2006 University of Florida PhD, Rehabilitation Science
Foundation (Bendixen) 2016 - 2018 Foundation to Eradicate Duchenne Use of Microsoft Bands as a Clinical Outcome Measure in Boys with DMD - VBP15-003 clinical trial parallel study Role: PI
90DP0064-1 2014 - 2019 NIDRR/HHS (Parmanto) Promoting Independence and Self-Management Using mHealth Role: Co-I
Project PI R34MH100253 (Johnson) 2013 - 2017 NIH/National Institute for Mental Health Behavior Treatment of Feeding In Autism Role: Co-I
NIH Intramural 2011 - 2016 National Institute of Neurological Disorders & Stroke, Neurogenetics Branch Effect of Functional Exercise in Patients with Spinal Bulbar Muscular Atrophy (no funding) Role: Associate Investigator
NIH Intramural 2011 - 2016 National Institute of Neurological Disorders & Stroke, Neurogenetics Branch Clinical and Molecular Manifestations of Neuromuscular and Neurogenetic Disorders of Childhood (no funding) Role: Associate Investigator
Completed (past 3 years)
Foundation 710611 (Bendixen) 2015 - 2016 Clark Foundation Use of Microsoft Bands as an Outcome Measure in Boys with DMD Role: PI
Grant# K01HD064778 (Bendixen) 2010 - 2016 NIH/National Institute for Child Health & Human Development Rehabilitation Comprehensive Assessment of the Impact of Illness and Disability in Children Role: PI
Foundation 709537 (Bendixen) 2014 - 2015 Foundation to Eradicate Duchenne Strategies for Engaging the Duchenne Muscular Dystrophy Community in Research Role: PI
Publications (past 5 years)
Bendixen, R., Butrum, J., Parks, R., Hobson, B., Nichols, C., Hsia, M., Elliott, J.S., Linton, M., Arveson, I., Tounkara, F., Harnett E., Punjabi, M., Donkervoort S., Dastgir, J., Leach, M., Rutkowski, A., Waite, M. Bonnemann, C., Jain, J., Meilleur, K. Upper extremity outcome measures for collagen VI-related myopathy and LAMA2-related muscular dystrophy. Neuromuscular Disorders. Accepted.
Reynolds, S., Glennon, T., Ausderau, K., Bendixen, R., Miller-Kuhaneck, H., Pfeiffer, B… Bodison, S. et al.. Supporting children with differences in sensory processing and integration through occupational therapy. American Journal of Occupational Therapy. In Press.
Bendixen, R., Houtrow, A. (2016). Parental reflections on the diagnostic process of Duchenne muscular dystrophy: A qualitative study. Journal of Pediatric Health Care pii: S0891-5245(16)30251-6. doi: 10.1016/j.
Fairman, A.D., Bendixen, R., Younkin, H., & Krecko, J.R. (2016). Use of assistive technology with transition-aged youth. SIS Quarterly Practice Connections, 1(2). Bendixen, R., Morgenroth, L, Clinard, K. (2016). Engaging participants in rare disease research: A qualitative study of Duchenne muscular dystrophy. Clinical Therapeutics, 38(6), 1474-1484. DOI:10.1016/j.
Kreider C., Bendixen R., Young, M.E., Prudencio, S.M., McCarty, C., Mann, W.C. (2016). Social networks and participation with others for youth with learning, attention, and autism spectrum disorders. Canadian Journal of Occupational Therapy, 83(1) 14-26 DOI:10.1177/0008417415583107.
Reynolds, S., Kreider, C. M., Meeley, L.E., & Bendixen, R. (2015). Taste perception and sensory sensitivity: relationship to feeding problems in boys with Barth syndrome. The Journal of Rare Disorders, 3(1), 1-9. PMCID: PMC4503373.
Kreider, C., Bendixen, R., Mann, W. C., McCarty, C., & Young, M.E. (2015). Mixed-method exploration of social network links to participation (2015). OTJR Occupation Participation Health, 35(3), 151-159 DOI: 10.1177/1539449215578650. PMCID:PMC4659346.
Kreider, C., Bendixen, R., & Lutz, B. (2015). Holistic needs of university students with invisible disabilities: A qualitative study (2015). Physical and Occupational Therapy in Pediatrics, 5(4), 426–441. DOI: 10.3109/01942638.2015.1020407. PMCID: PMC4636462
Vohra, R., Lott, D., Mathur, S., Senesac, C., Deol, J., Germain, S., Bendixen, R., Sweeney, H. L., Walter, G., & Vandenborne, K. (2015). Magnetic resonance imaging assessment of hypertrophic and pseudohypertrophic changes in lower leg muscles of boys with Duchenne muscular dystrophy and their relationship to functional measurements (2015). PLOS ONE. PMCID: PMC4477876.
Meilleur, K., Jain, M., Hynan, L.S., Shieh, C., Kim, E., Waite, M., McGuire, M., …Bendixen, R.,…& Bonneman, C. G. (2015) Results of a Two-Year Pilot Study of Clinical Outcome Measures in Collagen VI-related Myopathy and LAMA2-related Muscular Dystrophy. Neuromuscular Disorders, 25, 43-54. PMCID: PMC5125840
Bendixen, R., Lott, D., Senesac, C., Mathur, S., & Vandenborne, K. (2014). Participation in daily life activities and its relationship to strength and functional measures in boys with Duchenne muscular dystrophy. Disability and Rehabilitation (early online - DOI 10.3109/09638288.2014.883444).
Lim, Y., Velozo, C., & Bendixen, R. (2014). The level of agreement between child self-reports and parent proxy-reports of health-related quality of life in boys with Duchenne muscular dystrophy. Quality of Life Research, 23(1) - DOI 10.1007/s11136-014-0642-7. PMCID: PMC4140965
Kreider, C, Bendixen, R, Huang, Y, & Lim, Y. (2013). Centennial Vision—Review of occupational therapy intervention research in the practice area of children and youth 2009-2013. American Journal of Occupational Therapy, 68, e61–e73. http://dx.doi.org/10.5014/ajot.2014.011114.
Bendixen, R., Senesac, C., Lott, D., & Vandenborne, K. (2012). Participation and quality of life in children with Duchenne muscular dystrophy using the International Classification of Functioning, Disability and Health. Health & Quality of Life Outcomes, 10(43). Retrieved from http://www.hqlo.com/content/10/1/43. PMCID: PMC4125555
Reynolds, S., Kreider, C., & Bendixen, R. (2012). A mixed-methods investigation of sensory response patterns in Barth Syndrome: A clinical phenotype? American Journal of Medical Genetics Part A, 158A:1647-1653. PMCID: PMC3383655
Akima, H., Lott, D., Senesac, C., Deol, J., Germain, S., Arpan, I., Bendixen, R., Sweeney, H. L., Walter, G., & Vandenborne, K. (2012). Relationships of thigh muscle contractile and non-contractile tissue with function, strength, and age in boys with Duchenne muscular dystrophy. Neuromuscular Disorders, 22(1), 16-25. PMCID: PMC3215817
Reynolds, S., Bendixen, R., Lawrence, T., & Lane, S. (2011). A pilot study examining activity participation, sensory responsiveness, and competence in children with autism spectrum disorder. Journal of Autism & Developmental Disorders, 41(11), 1496-1506.
Bendixen, R., & Kreider, C. (2011). Centennial Vision: Review of occupational therapy research in the practice area of children and youth. American Journal of Occupational Therapy, 65(3), 351-359. PMCID: PMC3117256
Bendixen, R., Elder, J., Donaldson, S., Kairalla, J., Valcante, G., & Ferdig, R. (2011). Effects of a father-based in-home intervention on perceived stress and family dynamics in parents of children with autism. American Journal of Occupational Therapy, 65(6), 679-687. PMCID: PMC3252214
Complete List of Published Work in MyBibliography