Center for Large Data Research and Data Sharing in Rehabilitation

Rehab Sciences | Dec 11, 2020

Join Dr. Theresa Cruz, Director of the National Center for Medical Rehabilitation Research (NCMRR), a part of the NIH's Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), and the centers of the Medical Rehabilitation Research Resource Network Friday, December 11th, from 2-3 p.m. ET for a Webinar about Research on Rehabilitation Needs Associated with COVID-19. Dr. Cruz will introduce the NICHD Notice of Special Interest for applications of research on rehabilitation needs associated with COVID-19 and discuss what this notice means for funding opportunities.

Rehab Sciences | Nov 11 , 2020

A multidisciplinary team consisting of physicians, rehabilitation specialists, nurses, and data scientists looked at hip fractures. Using a visual analytical method Suresh K Bhavnani, PhD and team were able to identify subgroups of patients with hip fractures who shared pre-existing conditions and map out how combinations of these conditions could lead to a higher risk of readmissions. Read the UTMB News post, Data Science Driven by a Family Need and the scientific article, How High-Risk Comorbidities Co-Occur in Readmitted Patients With Hip Fracture: Big Data Visual Analytical Approach.

Rehab Sciences | Sept 14 , 2020

NIH Rehabilitation Research 2020: Envisioning a Functional Future October 15-16, 2020. This trans-NIH conference will highlight advances in rehabilitation research that have emerged since the 2016 Rehabilitation Research at NIH: Moving the Field Forward conference. This meeting also will help inform the revision of the congressionally mandated NIH Research Plan on Rehabilitation. This event is free to attend - register today!

Rehab Sciences | July 20, 2020

Browse workshop proceedings from Sharing Clinical Trial Data: Challenges and a Way Forward provided by The National Academies of Sciences, Engineering, and Medicine in this new interactive resource. The workshop considered ways in which policy, technology, incentives, and governance could be leveraged to overcome remaining barriers and further facilitate data sharing.

Rehab Sciences | June 23, 2020

NICHD’s Data Sharing Resources. NICHD supports a variety of resources and tools for researchers. Featured: National Children’s Study (NCS) Vanguard Study Archive. Biological and environmental samples and data from the NCS Vanguard Study are now available in NICHD’s Data and Specimen Hub (DASH). Researchers can request access to samples and data collected over 5 years from the 5,600 families in the study. The NCS Archive includes more than 250,000 samples, including blood, urine, hair, saliva, placenta, cord blood, water, dust, and air filtrates, as well as surveys, interviews, neuro-psychosocial and cognitive assessments, and physical data from pre-pregnancy through 42 months post-delivery. Check out the NCS archive and other available studies on DASH today. View all NICHD Datasets & Resources.

Rehab Sciences | May 29, 2020

The Agency for Healthcare and Research Quality (AHRQ) now requires all applicants for new/competing grants and research contracts to include a Data Management Plan. The notice (NOT-HS-16-008) also explains that appropriate costs for data sharing and management will be allowed in grant applications and research contracts. The CLDR has collected and developed numerous tools and resources for data management and archiving. This includes the Archive of Data on Disability to Enable Policy and research (ADDEP) which is housed within ICPSR at the University of Michigan. In addition to maintaining an extensive data archive, ICPSR provides training in data access, curation, and analysis. For more information about the resources or services provided, please contact us at CLDR.info@utmb.edu.