Center for Large Data Research and Data Sharing in Rehabilitation

Rehab Sciences | Sept 14 , 2020

NIH Rehabilitation Research 2020: Envisioning a Functional Future October 15-16, 2020. This trans-NIH conference will highlight advances in rehabilitation research that have emerged since the 2016 Rehabilitation Research at NIH: Moving the Field Forward conference. This meeting also will help inform the revision of the congressionally mandated NIH Research Plan on Rehabilitation. This event is free to attend - register today!

Rehab Sciences | July 20, 2020

Browse workshop proceedings from Sharing Clinical Trial Data: Challenges and a Way Forward provided by The National Academies of Sciences, Engineering, and Medicine in this new interactive resource. The workshop considered ways in which policy, technology, incentives, and governance could be leveraged to overcome remaining barriers and further facilitate data sharing.

Rehab Sciences | June 23, 2020

NICHD’s Data Sharing Resources. NICHD supports a variety of resources and tools for researchers. Featured: National Children’s Study (NCS) Vanguard Study Archive. Biological and environmental samples and data from the NCS Vanguard Study are now available in NICHD’s Data and Specimen Hub (DASH). Researchers can request access to samples and data collected over 5 years from the 5,600 families in the study. The NCS Archive includes more than 250,000 samples, including blood, urine, hair, saliva, placenta, cord blood, water, dust, and air filtrates, as well as surveys, interviews, neuro-psychosocial and cognitive assessments, and physical data from pre-pregnancy through 42 months post-delivery. Check out the NCS archive and other available studies on DASH today. View all NICHD Datasets & Resources.

Rehab Sciences | May 29, 2020

The Agency for Healthcare and Research Quality (AHRQ) now requires all applicants for new/competing grants and research contracts to include a Data Management Plan. The notice (NOT-HS-16-008) also explains that appropriate costs for data sharing and management will be allowed in grant applications and research contracts. The CLDR has collected and developed numerous tools and resources for data management and archiving. This includes the Archive of Data on Disability to Enable Policy and research (ADDEP) which is housed within ICPSR at the University of Michigan. In addition to maintaining an extensive data archive, ICPSR provides training in data access, curation, and analysis. For more information about the resources or services provided, please contact us at CLDR.info@utmb.edu.