Center for Large Data Research and Data Sharing in Rehabilitation

Additional Resources

Websites

• Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Data and Specimen Hub (DASH) NICHD DASH is a centralized resource for researchers to store and access data from NICHD-funded research studies to use for secondary research. It serves as a mechanism for NICHD-funded extramural and intramural investigators to share de-identified research data from studies in accordance with the NIH Data Sharing Policy and the NIH Genomic Data Sharing Policy.

• Federal Interagency Traumatic Brain Injury Research (FITBIR) informatics system The Federal Interagency Traumatic Brain Injury Research (FITBIR) informatics system was developed to share data across the entire TBI research field and to facilitate collaboration between laboratories, as well as interconnectivity with other informatics platforms.

• Health and Medical Care Archive (HMCA) The Health and Medical Care Archive (HMCA) is the data archive of the Robert Wood Johnson Foundation (RWJF), the largest philanthropy devoted exclusively to health and health care in the United States.

• National Information Center on Health Services Research and Health Care Technology (NICHSR) Improving the collection, storage, analysis, retrieval, and dissemination of health services research.

• PCORnet, the National Patient-Centered Clinical Research Network An innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI) designed to make it faster, easier, and less costly to conduct clinical research than is now possible by harnessing the power of large amounts of health data and patient partnerships.

• Research Data Assistance Center (ResDAC) Improving the collection, storage, analysis, retrieval, and dissemination of health services research.

• Vivli Center for Global Clinical Research Data Vivli is a not-for-profit entity that will promote global clinical trial data sharing through the establishment of a data platform where data can be hosted, searched, and accessed.