Annual Meeting 2020

2020 Annual Meeting

The Center for Large Data Research and Data Sharing in Rehabilitation (CLDR) held its annual meeting on January 30th in Galveston, TX, at the historic Tremont House.

The meeting included CLDR leadership (director and core directors), three of our four external advisory board members, collaborators and mentors, pilot project awardees, and other guests from UTMB.

Director Ken Ottenbacher, PhD, OTR, along with the core directors, provided an overview of activities and highlighted the achievements of our cores and pilot project awardees. New this year was a discussion and demonstration of our data directory, as well as data sharing and archiving, which included presentations from four investigators who archived completed projects through the CLDR (ICPSR). Additionally, six pilot PIs presented updates of their research projects.

Selected Presentations and Links

Disability and Rehabilitation Data Tools

Bill Erickson, MS, Research Specialist, K. Lisa Yang and Hock E. Tan Institute on Employment and Disability, Cornell University CLDR Data Directory Manager
Video: Disability and Rehabilitation Data Tools
https://datasetdirectory.disabilitystatistics.org/

Archive of Data on Disability to Enable Policy and Research

Shane Redman, MA, Data Project and Archive Manager, ICPSR, University of Michigan CLDR/ADDEP Archive Manager
Video: Archive of Data on Disability to Enable Policy and Research
https://www.icpsr.umich.edu/icpsrweb/content/ADDEP/

Archiving the Boston RISE Study: Lessons Learned

Jonathan Bean, MD, MS, MPH, Professor, Department of PM&R, Harvard Medical School; Director, New England Geriatric Research Education and Clinical Center, VA Boston Healthcare System, Spaulding Rehabilitation Hospital
Archiving the Boston RISE Study: Lessons Learned
https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/37045

Archiving data to accelerate rehabilitation relevant research in early intervention

Vera Kaelin, MScOT, Graduate Research Assistant, Children’s Participation in Environment Research Laboratory, University of Illinois at Chicago; Doctoral Student, Rehabilitation Sciences
Archiving data to accelerate rehabilitation relevant research in early intervention
https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/37320
https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/37131

A large, open-source dataset of stroke MRIs and manual lesion segmentations

Sook-Lei Liew, PhD, OTR/L, Assistant Professor, Chan Division of Occupational Science and Occupational Therapy, University of Southern California
A large, open-source dataset of stroke MRIs and manual lesion segmentations
https://www.icpsr.umich.edu/icpsrweb/ADDEP/studies/36684

The Emergence Evolution of Social Self-Management of Parkinson’s Disease

Linda Tickle-Degnen, PhD, OTR/L, Professor, Department of Occupational Therapy, Tufts University
The Emergence Evolution of Social Self-Management of Parkinson’s Disease
Study will be made available through the Archive of Data on Disability to Enable Policy and research (ADDEP)

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