Marcel and Josephine Patterson Memorial Lecture in the Medical Humanities
Perceptions of Vulnerability and Moral
Distress in Neurological Care
Georgina Morley, PhD, MSc, RN (UK)
Nurse Ethicist, Assistant Staff
Director, Nursing Ethics Program
Assistant Professor
Cleveland Clinic
Lerner College of Medicine
and
Lauren R. Sankary, JD, MA
Associate Director
Neuroethics Program
Center for Bioethics
Cleveland Clinic
Thursday, October 21, 2021
12:00 p.m.—1:00 p.m.
Register in advance for this webinar:
https://zoom.us/webinar/register/WN_Nke0o15xSjexPyKEZctrvw
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A free Social Work CEU will be offered for this presentation. After the presentation,
please reach out to Savannah Parks at sjparks@utmb.edu to claim your CEU.
Using case studies, we explore ethical complexities commonly arising in neurological care that compound moral distress. First, we analyze obstacles to shared decision-making for patients at the margins of decision-making capacity or whose capacity
fluctuates over the course of their clinical care, and the moral distress that can arise when there are incapacitated refusals of care. Second, we explore situations in which cognitive impairments present a possible contraindication to life-prolonging
interventions. We identify compounding factors likely to exacerbate moral distress in neurological care, including epistemic injustices, communication barriers, and the perceived vulnerability of patients with neurological conditions. explore connections
between sources of vulnerability identified in Kenneth Kipnis’ bioethical taxonomy of vulnerability and heightened moral distress amongst healthcare professionals. We conclude with recommendations to mitigate moral distress that may arise in
caring for cognitively vulnerable patient populations.