The Caregiver and Patient Support Study (CAPSS)
Interviews to assess the needs and support of patients with cognitive impairments (e.g., brain injury, mild cognitive impairment or Alzheimer's disease and related Dementias (MCI/ADRD)) and their caregivers
Unfortunately, millions of older adults face neglect and mistreatment through the use of money, resources, or property by others without permission. This project aims to create a screening tool to help protect older adults and improve referrals for support and services.
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Patients & Caregivers
We are seeking volunteers who:
- Have been diagnosed with OR are a caregiver of someone diagnosed with cognitive impairments (e.g., brain injury, mild cognitive impairment or Alzheimer's disease and related Dementia)
- NOTE: Patients with cognitive impairments (e.g., MCI/ADRD) must be 55+ years of age AND have received care at a primary care clinic.
Interviews with patients will address:
- Positive and negative factors for elder mistreatment
- Relationship experiences
- Emotional and social needs
- Healthcare experiences
Interviews with caregivers will address:
- Caregiving experiences
- Sources of stress
- Strategies to reduce stress
- Knowledge of elder mistreatment
- Challenges with seeking care or support
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Providers
We are seeking volunteers who:
- Are a UTMB healthcare provider (social worker, nurse, nurse practitioner, or physician) in a primary care setting
- Have experience working with patients diagnosed with MCI/ADRD
Monique R. Pappadis, MEd, PhD, FACRM is the Principal Investigator of this study. This study is supported by a grant from the National Institute on Aging. Volunteers will be compensated for their participation.
Contact Us
Lisa Thibodeaux, BSN, RNC-OB
Nurse II
Phone: (409) 747-1756
Email: at lbthibod@utmb.edu